Tuesday, February 10, 2009

Yet another diagnosis



I thought being diagnosed with Psoriatic arthritis in December and being told I'd had it since at least 1993, if not before, was bad enough. Yesterday I get a call from my GP who tells me all the scans etc I had over New Year have shown I have Osteoporosis in my spine - severe. In the interest of public decency I can't really put here what I said to her in reply.


So now I am left thinking why on earth did they not find this before. It's not as if I haven't been to the doctors recently; I have averaged 2 visits a week to my local surgery for one thing or another over the last 4 years. A lot of those things are bone/back/foot/ hand related. They have found out that I have 'multiple fractures of both feet on different occasions'. So is this why my feet hurt then. I did tell them often enough. It's not this recent GP, I haven't really said much to her about it, rather the previous couple, they ignored it so much I just gave up. Thought it was old age creeping on.

Now I'm down for more tests, xrays of my spine, bloods etc etc ad nauseum. I decided that I've got to get fit and I really need to do some load bearing exercise to strengthen my bones. Quite how I can, when at the moment every bone in my body is screaming in agony, my back won't seem to hold me upright a lot of the time, never mind the pain in my feet which has been steadily gaining in strength since Christmas I'm not really sure at this juncture.

I've also discovered that I am now 6 times more likely to break bones from minor injuries, this is obviously why I keep breaking ribs, (Neelu your words were prophetic) so I have to be a bit circumspect in what I do. No more offering to help with moving bricks and stuff with WH, I'm so clumsy I usually end up doing some damage anyway. I have a gung-ho approach to things like that anyway, if I can physically manage something at the time I'll do it, never mind the usual payback after the event. It helps me feel normal i.e. not sick - don't you know.

Yesterday I started the chewable calcium tablets 'especially suitable for the elderly' and have yet to take the once weekly thing where I need to keep upright for 2 hours afterwards and during which time I can't eat anything or take any other meds. OK, I know thousands if not millions of other people do all this and have the same diagnosis but surely not at my age, not really, honestly. Of all the crap health-wise I have had to put up with over the years, this seems to have affected me the most mentally. Trying to be rational I tell myself that it's not life threatening, millions are worse off than me and facing life limiting illness and far worse handicaps every day. I accept all that really I do. I just have one overwhelming feeling that I have never, ever had before. Suddenly, I feel old.

5 comments:

Anonymous said...

Oh Jas, this is crap, this really is, I'm sorry.

Unknown said...

Thanks Thursday. Not just my thoughts then.

Anonymous said...

Oh that's awful. When you mentioned the cracked ribs I had a hunch and it seemed to make sense but now I wish I was wrong:(

Neelu

Unknown said...

It does all sort of make sense now Neelu doesn't it? I was already being investigated before your comment as it's the Rheumy who found out, but it's good to know there is an explanation and I am not just super clumsy!

How's your treatment going?

Anonymous said...

The IV treatment itself is okay thanks but when they did a blood test at Breakspear (for liver function to make sure I don't get sludging from the treatment)- they got an unpleasant surprise.

They found some abnormalities; low blood volume, low haemoglobin and the blood cells are smaller than they should be. My Breakspear Dr suspects that it could be thalasemia and is contacting my GP to arrange further tests. It's genetic and as far as I knew, no one else in the family has it so it came as a real surprise but apparently a parent who is the carrier of the gene can be asymptomatic.

Kind of makes me wonder what all those NHS Noctors were doing over the years when they ran so many tests on me and still said they were all negative as if that were confirmation that there was physically nothing wrong. Anyhow it's not a confirmed diagnosis as yet, I expect to know for sure after the other tests are carried out and the results come back from those.

Neelu