Monday, September 30, 2013

Cuddles day


If it's Monday it must be cuddles day, not for me, for one of my grey babies, Misty, the smaller of my twin cats. 

Sunday nights I take a weekly dose of Methotrexate along with whatever food I fancy will keep the dreaded nausea at bay. Even if I have just eaten, I must eat again 'on top' of the pills in order to keep them down and to allow me to take the other seven I take each night. Taking before or even with a meal is usually too early in the evening and I get the side effects before I'm asleep. So years of trying other times/combinations have lead to this current practice. The usual snack of choice is biscuit based, gingery or maybe cheesey. Occasionally actual cheese does it, but anything 'sensible', fruity, veggy, or runny is a no no. It has to be dryish, bland and filling. The food police are having a fit just reading this.

There then follows a shortish night of frequent trips to the bathroom, night sweats, thirst, headaches and general feverishness. By the time I have started to sleep properly, around 5.45am, the alarm goes off and WH has to get ready for work.  I try to go back to sleep and frequently fail. I have to take more pills at 6am anyway and Mondays I have the added bonus of a Folic Acid pill too. I have to eat again then, usually breakfast but for those times I really can't eat anything 'proper' it's more biscuits. I tried and failed to get those pills down unaccompanied too but the ensuing nausea was worse than ever.  An hour after that lot and by the time I've dressed, tidied, emptied the dishwasher and pandered to the cats, I'm knackered and ready for bed again.  

This all conspires to make Mondays a waste of time for me. Not so for the smaller of my twin grey cats. He's normally a pain in the bedroom at night, taps me when he's hungry, has a major wash next to my head when I'm fast asleep and has a thing about doors, an open door must be shut, a shut door is only there to be opened. On Mondays however it's as if he knows. As soon as I go near the bed he's there on the corner, getting ready to snuggle in. When I pull up the duvet he shifts into position against my leg and there he stays, good as gold. I get the occasional glance to see if I'm likely to move but for as long as I'm there, he's there. No tapping, no washing, just extremely good behaviour. Of course I might reach down and give him a quick cuddle but he doesn't expect over much and certainly doesn't pester me for more. In fact, the perfectly behaved cat. His brother Nelson, meanwhile is usually outside if the weather's good, if it's not he'll be in his cardboard box in the living room (but that's a whole other story).

My question is simple. If Misty can behave for a few hours each Monday then why on earth can't he do it the for rest of the flipping week?

Welcome back to the madhouse


Clipart by lineartestpilot: http://clipartof.com/1153537

It's been three years since I posted here and I have decided during the hiatus from work which is autumn I might as well revisit this blog.

My life has changed much since I was last here, one of the biggest things is that Lyme disease is now on the top of a lot of people's agendas. It's still vastly misunderstood by the NHS and it's still an uphill battle to get proper, successful treatment but the sad fact is that more and people are affected by it and the wonders of cyberspace have joined a lot of sufferers together so that they are not so alone as they were in the past. I joined a support group online and see that the relative newbies to this awful disease are as bewildered and angry as I was all those years ago when I was first diagnosed. I thought that by resurrecting this blog some of them would be able to go back and see posts I made when I was undergoing intensive treatment and also from before that time to see how it was for me. 

If I can help just one person then I would be very happy.  On a purely selfish note it also saves me having to keep repeating the story, I can just point interested people here.

On a lighter note I won't just be posting about illness, although you have to realise that life with Lyme is one big balancing act underpinning my entire life and I frequently topple over. You can expect notes on my wider interests from my business to my cats via gardens, cooking and my other passions.

It's good to be back.