Friday, October 18, 2013

Just a pile of old bones

I don't often eat pork, WH is allergic so it's rarely worth cooking any for one. Recently though, lured by the reduced section in Waitrose, WH succumbed to a pack of spare ribs, enough for one very large or 2 small portions. In turn I then succumbed to a really old fave of mine from the days when the famed Great American Disaster diner was open in Birmingham and saturday nights were often spent eating US style. That was at least 35 years ago but the memories still linger. 

I've just finished my second plate of Spicy Barbecue Ribs and they were even better than the first lot yesterday. Here's the recipe.

500g pork ribs
100ml golden syrup
100ml tomato ketchup
100ml tomato puree
20ml worcester sauce
1 beef stock cube dissolved in 50 ml boiling water
Half teaspoon smoked paprika
Half teaspoon mustard powder (more if you like it really hot)
Few twists of black pepper
Pinch of salt

Mix all the ingredients except the ribs in a flat dish. 
Add the ribs and cover with the sauce. 
Cover the dish and refrigerate for at least 4 hours.
Bake covered with tin foil in a moderate oven for 3-4 hours. 
If they look like they are drying out too quickly add some water to the sauce periodically.

Eat with a big smile :) jacket potatoes and sweetcorn. Yum

Tuesday, October 08, 2013

Tidal wave

Well it's been quite an eventful week one way or another but not stuff I really want to write about just now. I have been upping the Samento and Banderol though. After I could tolerate 10 drops each time for a couple of days, I started increasing the dose exponentially so I'm now up to 25 drops of each in the morning and 10 drops at night with no extra effect. I am starting to see little improvement too, certainly a lot of the brain fog is lifting and I have slightly more energy.

Tomorrow in London is the PHE Conference on Lyme disease. What started out looking like a seemingly boring presentation of the same old same old in relation to the new Lyme unit being set up in Hampshire, now begins to look slightly more promising with the input of Lady Mar, the LDA and real live patients. I wish I could have gone but it is just too far and too expensive by public transport and driving on my own out of the question.  Several people from a group I belong to are going so I'm looking forward to their reports afterwards. PHE have promised some transcripts and videos afterwards but I admit I'm sceptical of some of their answers to questions about these provisions put to them in advance.

With various other pieces of research coming to light now and the recent statement regarding Lyme Disease and services in the HPA (Health Protection Agency) we can begin to see a tiny chink of light at the end of a very long tunnel. The tide is starting to turn for Lyme disease but I dont expect it to be even half way in in  my lifetime.

Wednesday, October 02, 2013

Herxing like Hell

Been back on the good old Samento and Banderol (herbal antibiotics) for a week now. I've got up to 5 drops a day of each and I'm permanently nauseous. The treatment protocol suggested by Dr Marty Ross a leading authority in Lyme treatment suggests starting at 10 drops of each TWICE a day and I can't even tolerate one quarter of this.  Presumably all this is a giant herx which rather points to there being a lot of Borrelia coursing round my system again.

I've started now as I have 5 weeks between craft shows so I don't have to work outside the house, however I would like to do some work indoors, out of the last 7 days I have achieved the equivalent about 2 days, not good. The rest of the time I am laid low with a permanent headache, fever, nausea, a rash, muscle pain and palpitations. Not good.

I'm going to persevere though as I'm sure if I can zap a few more of those pesky spirochaetes my overall health should improve and maybe my legs will start to work normally again. At the moment they are firmly switched off, the brain is willing but it's like the power supply just died. I've got an appointment with the NHS rheumatologist in a couple of weeks, wonder what he will have to say about the old legs.  Usually its  a case of 'oh well try and get some exercise,' he hasn't quite grasped that I am trying and I fail every time! Maybe I should start talking nerve damage and see what he suggests then. Meanwhile I'm just hoping I have the oomph to actually get to the appointment.