Some people have asked me why I call this blog Life in the Straightjacket. If you read the previous post about government funding for ME research you might have clue.
I have had ME for almost 14 years, no treatment has been forthcoming except CBT (cognitive behavioural therapy) and GET (graded excercise therapy) both of which have been shown in numerous studies not to work and at worst to be positively detrimental to the condition. The accepted practice is to treat the symptoms not the root cause of the disorder.
This is why I feel I am in a straightjacket, one made by the Medical Establishment and fastened by Prof Simon Wessley and his ilk, psychiatrists who refuse to accept the findings of the researchers the world over and prevent proper recognition and help for us suffers.
I am hoping and waiting for the day that all of us stuck in the straightjacket can shake if off and strike out for pastures new but I fear it will be a very long wait.
2 comments:
Very bad situation you have over there. My sympathy, we sure don't seem to have anything similar here, in fact my doctor works with me if I have any suggestions.
Hope you find someone who can do something positive.
Thanks Terry.
Hi, how are you??
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