I have been watching a series of video diaries made by Greg Crowhurst. He is posting them on YouTube and is showing for 2 weeks what it is like caring for his wife Linda who has severe ME. Today we have reached day 6. I find them extremely moving and am glued. This chap is the only one I have ever seen truly put the case for proper research and treatment for ME.
His presentation to the Gibson Enquiry was brilliant. It should have been on primetime TV. He should be on the News, in the newspapers and on the radio. Of course he wouldn't have the time being as he is a full-time carer to his wife and has been for many years.
I so wish I was in a position to publicise this more. This is my attempt here. Please watch these videos and get others to watch them too. The scandal of the treatment of ME sufferers in this country, particularly those with the most debilitating form, those 25% who suffer with severe ME, must not be allowed to continue.
Please support him in what ever way you can.
2 comments:
Wow, Jaz. That is some powerful stuff. I will definitely watch the rest of his diary.
I knew of how poorly ME is being treated in the UK, but I guess I needed to see this to really make me see how this scandal affects your day to day lives.
Sigh. I just don't know what I would do.
Hi Carol, great to see you here! How are you doing??
Hope you manage to post a comment on one of the videos, Greg needs lots of encouragement.
BTW Hope anyone who sees this sends the link on to at least 3 other people to publicise it. We need all the publicicty we can get over here.
xx
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