Sorry I've not been around but I really have not much to say. I've had a hellish few weeks with some new meds and I've been asleep for great parts of them.
I've also been stuck into the family tree seeing as I couldn't do much else and by the time you've ploughed through 50 plus census sheets and re-examined them with the magnifying glass, the last thing you want to do is peer at at a pc screen.
Mother-in-law is not too well now, she's very frail so I'm doing meals-on-wheels for her on a daily basis. 7 days a week. She has 3 daughters but funnily enough they're not very forthcoming with extra help. Thank goodness for No 1 daughter who picks up the dinner on a school day and delivers it to the recipient in the next village on her way past.
And I lost my cleaner, the wonderful Ms T, she had so much on her plate she's had to give up work. I'm going to miss her dreadfully especially at the moment when I'm doing my own cleaning (and ironing which is the real killer).
So just a few snippetts of random information but nothing very exciting, I have only been out twice in 3 weeks after all.
5 comments:
Sorry to hear life is not treating you very well. Kinda missed your posts. Hope your mother in law is getting better. Is WH helping you much?
Neelu
Hi Just came across your post through another.
Sorry to hear you have Lyme Disease for so long and hope you are now having adequate treatment.
I guess you have found www.lymediseaseaction.org.uk and Eurolyme where there is much information.
I have been ill with artghritis/muscle weakness 6 years and 2 years ago GP suspected Lyme Disease after a chance course of antibiotics improved my symptoms. I am now nearly 100% better although still on antibiotics. I saw a specialist LLMD in Cardiff and GP was happy to follow ILADS treatment inspite of being advised against it by HPA.
Good luck for your recovery the nearly 2000 patients on Eurolyme have all had similar experiences to us with years of illness and misdiagnosis. So who says it is so rare and easy to cure only those who have the power but not the will to treat us.
Hi
I have now scrolled through more of your posts and see you have been under the care of LLMD.
Have you discussed your recent diagnosis arthritis P? with him sorry can't spel.
Are you completely sure you have eradicated all Borrelia?
Best wishes Joanne
Thanks for your kind words.
I have discussed the PA with the Lyme doc, he suggested I go revisit the Rheumy in the first place. He feels it is a separate issue unfortunately although given some of my symptoms right now I do wonder. (Think I see the same person as you do Joanne)
BTW Eurolyme gave me all the info I needed initially to sort this out, it was seeing their photos of the EM rash that prompted me to investigate Lyme in the first place.
Hi
Thanks for the reply but if in doubt go back to LLMD.
I have had arthritis of virtually every joint and muscle weakness I was on Amoxicillin most of the time which was brilliant but Doxy was not so good and new symptoms developed all the time on Doxy. I had swallowing difficulties and muscle weakness in upper legs and arms.
I have had x rays and scans that show signs of Rheumatoid and osteoarthritis.
I am nearly 100% recovered with no pain or weakness just a little inflamation in knees and feet so a little longer yet on antibiotics.
Just try antibiotics again and see if you improve or go see LLMD.
So much research coming through at present on lyme disease. It would not at all surprise me if some of your symptoms are Lyme. Even LLMD is on a steep learming curve and we are our best advocates at finding what is good for us. I just googled Minocin and arthritis there are ongoing articles about the benefits of antibiotics for arthritis sufferers very interesting reading. Our consultants and doctors are years away from taking the research on board.
Good luck Joanne
Post a Comment