Yesterday I posted about Greg Crowhurst's new video regarding the Gibson report to the OneClick Protest Board. His wise words counseled moderation and to use the report as a gift which the ME community could use a base for further bringing the subject into the public domain. All posts are moderated, nevertheless I was rather surprised to receive a curt note from the moderator and self-styled censor that my post was not welcome. Other remarks in her email I found deeply offensive. I countered with the copy of a comment to Greg from another member of OneClick which was very supportive.
The reply I next received was even more offensive and I was really shocked at the words used. I won't begin to reproduce them here as they are not the sort of thing I would expect to read in polite conversation not were they the sort of terminology conducive to productive dialogue. I was then hastily removed from their membership list and locked out of the site.
My point is this: We all know that the Gibson Report is less than ideal by a long stretch but surely as sufferers trying to get some sort of public recognition we use the opportunity to bring this to the public's attention and highlight the way that the Psychiatric Lobby has hi-jacked this disease for it's own. A point which Gibson actually makes very well.
As Greg Crowhurst so eloquently puts in his video surely by infighting and divisive action amongst the patient groups we are playing straight into the hands of the Psychiatric Lobby at a time when we should all be joining together to further our cause. This is surely a case for moderation in all things and I am equally sure that we will not win the fight by rude, overly aggressive dialogue. We want to get all the medics and researchers on our side not wondering if perhaps we are all crazy after all.
The reply I next received was even more offensive and I was really shocked at the words used. I won't begin to reproduce them here as they are not the sort of thing I would expect to read in polite conversation not were they the sort of terminology conducive to productive dialogue. I was then hastily removed from their membership list and locked out of the site.
My point is this: We all know that the Gibson Report is less than ideal by a long stretch but surely as sufferers trying to get some sort of public recognition we use the opportunity to bring this to the public's attention and highlight the way that the Psychiatric Lobby has hi-jacked this disease for it's own. A point which Gibson actually makes very well.
As Greg Crowhurst so eloquently puts in his video surely by infighting and divisive action amongst the patient groups we are playing straight into the hands of the Psychiatric Lobby at a time when we should all be joining together to further our cause. This is surely a case for moderation in all things and I am equally sure that we will not win the fight by rude, overly aggressive dialogue. We want to get all the medics and researchers on our side not wondering if perhaps we are all crazy after all.
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